Who we are

The TTP International Working Group (TTP-IWG) was established to promote international collaboration and advance understanding, diagnosis, and treatment of thrombotic thrombocytopenic purpura (TTP) and related thrombotic microangiopathies (TMAs). Our journey began with an initial effort at the European Hematology Association (EHA) meeting in 2013, followed by regular gatherings at major conferences such as ASH, which strengthened our global network.

A landmark moment in our history was the publication of the consensus paper:
Scully M, Cataland S, Coppo P, de la Rubia J, Friedman KD, Kremer Hovinga J, Lämmle B, Matsumoto M, Pavenski K, Sadler E, Sarode R, Wu H; International Working Group for Thrombotic Thrombocytopenic Purpura. "Consensus on the standardization of terminology in thrombotic thrombocytopenic purpura and related thrombotic microangiopathies." Journal of Thrombosis and Haemostasis (JTH), 2017.

This foundational work established standardized terminology for TTP and TMAs, fostering a shared language for clinicians and researchers worldwide. While all authors were deeply committed to fostering international collaboration, Professor Evan Sadler, now sadly departed, provided quiet yet powerful words of encouragement to ensure this mission endured.

Ongoing Initiatives

Since our first International TTP Meeting in San Diego in 2016, described as the highlight of ASH that year, we have consistently hosted symposia to unite global experts. Despite disruptions during the COVID-19 pandemic, our annual meetings have expanded to include platforms such as ISTH, offering broader engagement.

In 2022, we introduced travel grants for junior faculty, enabling emerging leaders to attend international meetings and contribute to the field. Building on this momentum, 2024 marked a milestone with the award of our first research grant, further solidifying our commitment to advancing science and patient care.

The TTP-IWG remains dedicated to fostering collaboration, driving innovation, and ensuring that the legacy of pioneers like Professor Evan Sadler continues to inspire future generations.